Cleft Con Houston 2024

Join members of the cleft community for Cleft Con this July in Houston! Over the course of a jam-packed weekend, you’ll learn from some of the top experts in the field, make new friends, and hear real talk on the emotional, medical, and logistical issues our community knows so well from others who have been there.

As the world’s largest cleft charity, Cleft Con is vital to Smile Train’s work of educating the public about clefts to reduce stigma, drive acceptance, and promote the inherent beauty of every face.

We look forward to meeting you and your loved ones and celebrating the important work that the cleft community does every day. Register today and join us in Houston!

Keynote: Lisa Olivarez and her son
Emcee: Lou Jug and Sally Hiraldo. Second choice: Alison Fors

Track for all:

The Road to Cleft Acceptance: Share Your Story
Speakers: Karalyn Holden, Jim Rowe, Monica Bush
Moderator: Vickie Stolle
Join us as we create an intimate and supportive space for individuals from diverse backgrounds to open up about their experiences with their cleft. We will also delve into heartwarming, inspiring stories of individuals who have navigated the unique challenges and triumphs of the cleft journey.

Insurance Assurance: An In-Depth Workshop for Navigating Your Insurance
Speakers: Jocelyne Huitron, Teresa Bridges, Corinne Altrichter
Are you facing questions about cleft treatment coverage and insurance challenges? You’ve come to the right place! If you are the parent of a child with a cleft, a caregiver, or if you have a cleft yourself, this indispensable session will leave you with practical strategies for navigating the insurance process, including understanding policy benefits, filing claims, appealing denials, and maximizing coverage options. You will also come away empowered to advocate for access to the comprehensive and timely cleft care you and your loved ones need.

Amplifying Voices: Advocating for the Facial Difference Community
Speakers: Becky Abbott, Ellen Mador, Luci Capo Rome
Moderator: Adina Lescher
In this compelling session, we will explore the diverse experiences, challenges, and triumphs of individuals with facial differences and highlight the importance of amplifying their voices in society. We will also showcase successful advocacy initiatives and learn strategies for promoting inclusivity, raising awareness, and fostering acceptance from some of the most influential and outspoken leaders and activists in the facial difference community. You will come away inspired and empowered, with practical ways to support and advocate for greater representation and equity for every face.

Cleft Kid Superheroes: Unleashing the Power of Resilience and Community
Speakers: Cleft Kid Superheroes
Welcome to "Cleft Kid Superheroes" – an empowering and uplifting session celebrating the resilience of individuals with clefts. Together, we will explore the importance of representation, advocacy, and support networks in helping our children embrace their differences with pride. From navigating medical treatments to overcoming societal stigma, this session will offer valuable insights and strategies for instilling the next generation with resilience, self-confidence, and other superpowers.

Navigating Craniofacial Challenges: Insights from Dr. Hollier
Speakers: Dr. Hollier, Dr. Laura Monson
Join us for this profoundly insightful session featuring Dr. Larry Hollier, a renowned craniofacial surgeon and chair of Smile Train’s Medical Advisory Board, as he shares his invaluable advice and perspective on navigating the complexities of clefts and other craniofacial conditions. With his trademark blend of expertise and compassion, Dr. Hollier will draw on his extensive experience with patients and families to give practical guidance on the medical aspects of craniofacial surgery — including diagnosis and treatment options — while also emphasizing the critical importance of psychosocial support for building acceptance and self-confidence. He hopes to give a deeper understanding of a holistic, body-and-mind approach to craniofacial care, while providing a safe space for open dialogue and sharing. Participants should feel free to ask questions, seek guidance, and connect with others who understand their experiences.

Embracing Differences: Navigating Cleft and Adoption Journeys
Speakers: Sam Rosen, Max Rosen, Lisa Olivarez
Moderator: Suzie Santomieri
Join us as we dive into the unique dynamics, challenges, and joys of navigating both the cleft journey and the adoption process. We’ll explore the emotional aspects of adopting a child with a cleft, including the initial reactions, concerns, and fears that may arise, as well as the profound love and resilience that ultimately define the journey. We will also learn about resources, support networks, and strategies for building strong bonds and empowering our children to embrace their differences with confidence and pride.

Adult Track:

Love Beyond Appearance: Navigating Romantic Relationships with Facial Differences
Speakers: Luci Capo Rome and Dick Rome, Courtney and Joe Collins, Lou Jug and Stacia Damron
Moderator: Iva Ballou
In this heartfelt and empowering session, we will explore the intricacies of romantic relationships through the lens of facial differences. Through candid discussions, personal anecdotes, and interactive exercises, attendees will explore topics such as disclosing one's facial difference to a partner, confronting societal perceptions and stereotypes, and cultivating self-love and acceptance. Whether you're navigating the early stages of dating, in a committed relationship, or exploring the possibility of love, this session offers valuable insights and tools for charting the complexities of romantic connections with confidence and authenticity.

Sharing the Cleft Journey: Being an Empowering Voice on Social Media
Speakers: Steph Heintz, Vickie Stolle, Garrett Brill
Moderator: Ashley Barbour
In this session, social media influencers, advocates, and community leaders will provide practical tips, strategies, and best practices for effectively sharing your cleft journey across platforms. You will learn how to leverage social media to connect with others, raise awareness, and foster a supportive online community for cleft-affected individuals and families.

Parent Track:

“Don’t Google It”: Telling Family and Friends Your Child Will Have a Cleft
Speakers: Mollie Morgan, Gina Kocher, Matt Martin
Moderator: Gloria Madera
One of the first challenges parents encounter after they get the cleft diagnosis is, “How do we share the news? When?” In this session, you will get practical advice, compassionate insights, and firsthand perspectives from people who have been there. Through shared experiences and supportive dialogue, attendees will gain a deeper understanding of the emotions and concerns that parents, siblings, grandparents, and other family members may experience and learn how to provide meaningful support and encouragement.

Empowering the Next Generation: Navigating Cleft Care, Appearance, and Social Challenges with Resilience
Speaker: Dr. Petra Duran
At Cleft Con, we are dedicated to empowering children and teens with clefts to navigate their journey with confidence, resilience, and self-acceptance. In this inspiring, informative, and interactive session, experienced counselors, educators, and youth advocates will give young people the tools to overcome challenges related to cleft care, appearance, and social interactions. We will engage in interactive discussions, activities, and shared experiences designed to foster self-esteem, resilience, and a sense of belonging.

Community-building sessions:

Cleft Community Building with Iva
Speaker: Iva Ballou
This session will highlight the diverse perspectives and experiences within the cleft community, celebrating the strength and resilience of individuals from all walks of life. Participants will be encouraged to embrace their unique stories and identities and find empowerment and validation in a community that values diversity and inclusivity. Whether you're a parent, caregiver, individual with a cleft, or ally, you are welcome to join us in building a supportive and inclusive community that uplifts and empowers every member. Together, we can create a network of support, understanding, and solidarity that fosters growth, resilience, and belonging for cleft-affected individuals and families.

Cleft Care for Adults
Speakers: Toni-Elizabeth Wilkerson, Ellen Mador
Join us for an insightful session tailored to adults navigating cleft care. Whether you're seeking information on coping strategies, or community support, this session is designed to empower you with valuable resources and practical guidance. Led by individuals with lived experiences, we'll explore a range of topics, such as psychosocial well-being. This session aims to provide comprehensive support and foster a supportive community for all.

Breakfast with Lisa
Speaker: Lisa Wyzlic
Led by Lisa Wyzlic, a passionate cleft advocate and parent, this session offers a supportive space for parents of children with clefts to connect, share experiences, build community, and find strength in solidarity.

Fireside Chat with Crystle Stewart: Empowering Smiles and Changing Lives
Speakers: Troy Reinhart, Crystle Stewart
Join us for an engaging fireside chat featuring Crystle Stewart, Miss USA 2008, and an esteemed member of Smile Train's board of directors. In this intimate conversation moderated by Troy Reinhart, Senior Vice President of community and ambassador Development, participants will have the opportunity to hear Crystle's inspiring journey and learn more about her impactful work with Smile Train.

Reflecting on Love Meets Joy: Season Two
Speakers: Iva Ballou, Ashley Barbour
Join advocates Iva Ballou and Ashley Barbour as they take a heartfelt journey through Season Two of Love Meets Joy. Throughout Season Two, Iva and Ashley had the privilege of interviewing several members of the cleft community, each with their own unique stories and perspectives. From these candid conversations, they explored themes of resilience, acceptance, and the power of community support in overcoming obstacles. Join us as we reflect on the impactful moments, touching stories, and valuable lessons learned throughout Love Meets Joy: Season Two. This session promises to inspire and uplift as we celebrate the strength and unity within the cleft community.

Cleft Con Houston will be held at the InterContinental Houston (6750 Main St, Houston, TX 77030) and Goode Company Armadillo Palace (5015 Kirby Dr, Houston, TX 77098).

Friday, July 19

6:00pm
Welcome dinner
Goode Company Armadillo Palace

Saturday, July 20

8:00am
Light Breakfast
InterContinental

9:00am
Cleft Con Opening Remarks

10:00am-12:00pm
Cleft Con sessions and community-building programming

12:00-1:00pm
Lunch

1:00-5:30pm
Cleft Con sessions and community-building programming

7:00pm
Dinner
InterContinental

Please note that the schedule is subject to change.

When is Cleft Con Houston?
The conference begins with a Welcome Dinner on July 19th at The Goode Company Armadillo Palace. Sessions, Community Building activities, and a light breakfast and lunch will be held at the InterContinental from 8:00am-5:30pm on July 20th. A Closing Dinner will be held at the InterContinental beginning at 7:00pm that evening.

Goode Company Armadillo Palace is located at 5015 Kirby Dr, Houston, TX 77098 
InterContinental Houston is located at 6750 Main St, Houston, TX 77030

What if I can only attend part of the conference?
No problem! In the registration form you can let us know which portions you will be joining.

How much does it cost to attend the event?
There is no cost to attend Cleft Con.

Who can attend the event?
Cleft-affected individuals and their close connections are invited to attend Cleft Con.

Can children attend the conference?
Children over the age of ten are welcome to attend the conference. Please reach out to us at cleftcon@smiletrain.org if you are interested in learning more about childcare services.

Will there be food at the event?
Yes, breakfast, lunch and dinner will be provided at the conference.

I am traveling for Cleft Con. Where should I stay?
We recommend that non-local attendees stay at The InterContinental. Use this link to reserve a room in our room block.

I’m coming in early or staying late and am interested in Houston tourist recs and advice about how to navigate the city.
Our favorite Houston tourist recommendations will be included in the Cleft Con Houston Welcome Packet that you will receive after registration. You are also welcome to reach out to us at cleftcon@smiletrain.org to discuss individual travel plans any time!

I am unable to attend Cleft Con Houston. Can I watch it virtually?
This event will not be live-streamed, but we invite you to join our 5th Annual Virtual Global Cleft Con on Saturday, November 2nd.

Will there be a Cleft Con in my city?
We hope to host Cleft Con in cities across the country in the future. We also have our virtual Cleft Con each November, and we encourage members of the cleft community to join as we have speakers and attendees from around the world. The 5th Annual Global Cleft Con will be held on Saturday, November 2th.

Do I have to be a Smile Train supporter to attend Cleft Con?
Cleft Con is open to all members of the global cleft community, and you do not need to be a Smile Train supporter to participate.

I would like to serve as a volunteer during Cleft Con
Great! We have a range of volunteer opportunities available. Please reach out to us at cleftcon@smiletrain.org to learn more.

There are cleft-related topic(s) that are important to address during the program, and I would like to share them with you.
Thank you! We are counting on people like you to help us make Cleft Con a success. Please reach out to us at cleftcon@smiletrain.org with any and all ideas.

Will you be able to accommodate my allergy or dietary need?
Smile Train will do our best to accommodate dietary restrictions, allergies, and disabilities. Please share this information when requested in the registration form.

Will there be any Covid related precautions?
We will continue to base Covid-related policies and practices on local public health guidance and current CDC regulations. Please email cleftcon@smiletrain.org with any questions or concerns about Covid related precautions.